Wednesday, January 25, 2023

The Big Terrible Thing


Wow, it's been over three years since I published a post here. I would like to start writing again, so hopefully there will be more posts to come.

I recently finished celebrity Matthew Perry's memoir, "Friends, Lovers, and the Big Terrible Thing". I was enthralled the entire time and continue to find myself thinking about the words of the book. Perry describes his 53 years in lurid detail, revolving much around what he describes as his "big terrible thing" - alcoholism and opioid addiction. He painstakingly discusses the shocking depths of the trenches addiction placed in his life. It has almost killed him multiple times, and even though he is clean and sober now, the darkness threatens to overshadow him regularly.

I believe that addiction is a disease. I really do. The continual choice to engage in addiction, however, is sin. Most of us are not addicts, at least not to drugs or alcohol. What we do have in common is the weight that unchecked sin has on our lives. Romans 3:23 tells us that "all have sinned and fallen short of the glory of God". None of us are immune to it or its effects. Note that the text does not differentiate here between sins; it doesn't matter if your poison is drugs, lust, pride, gluttony, or gossip and divisiveness. Each and every one of those things separate us from God. "The wages of sin is death..." (Romans 6:23a); it's literally going to kill you without intervention. And like addiction, sin will continue to pull you down - and it will keep creeping back up even when you think you're on the right track.

There's good news for us sinners: "...but the gift of God is eternal life in Christ Jesus our Lord" (6:23b). The thing about this gift though, is that you have to accept it. It's freely offered but not applied until you put it to use - like a coupon that comes in the mail that you have to redeem to get the savings. The Bible explains exactly what one must do to accept it: "If you declare with your mouth, 'Jesus is Lord' and believe in your heart that God raised him from the dead, you will be saved" (10:9).

You may be thinking, "This is basic. I already know this; I'm already a Christian." Great! Do we understand, though, how much our sins affect us? Christ died for all sins and we are redeemed - still saved, still going to heaven. However, unchecked and repeated sin damages our relationship with God - even if it doesn't hurt anyone else, even if it isn't illegal, or what we deem as "wicked". We know that there aren't degrees of sin, but let's face it, we often act like there are.

There is a specific sin that I struggle with daily; I'm ashamed to admit it, but oftentimes I judge people in my head and think negatively about them, comparing their sins to mine and concluding that somehow they are worse than me. I never verbalize these thoughts to people; I'm not a mean person. I try my best to be friendly and kind regardless of what might cross my mind when I think about them. But this internal habit is still awfully ugly - it is unkind, it puts my pride on full display, and it isn't holy.

In order for me to be able to fully accept God's grace, I must recognize my desperate need for it. Kyle Idleman discusses this and more in his book, "Grace is Greater". We are depraved because of all of our sins, even the private ones that only God knows about. We must realize that our own sin is tantamount to everyone else's, and that our need is fierce. In I Timothy 1:15, Paul says, "Here is a trustworthy saying that deserves full acceptance: Christ Jesus came into the world to save sinners—of whom I am the worst".

As Christians, I believe that our "big terrible thing" is sin, and the sin you struggle with the most specifically. Remember, our big terrible thing separates us from God and we need his grace and mercy daily. Take your sin seriously. Don't just blow it off because you know you're forgiven, or because you think it is insignificant. Take responsibility, and repent. Commune with God regularly and strive for holiness. II Timothy 1:15 says this; "...who saved us and called us to a holy calling, not because of our works but because of his own purpose and grace, which he gave us in Christ Jesus before the ages began." Read also I Peter 1:15-16.

Reflect: What is your "big terrible thing"? Have you ever stopped to think that you are the worst of sinners? How does this realization make you feel? Do you think that regular confession and repentance is important?

Sunday, December 8, 2019

Just Keep Swimming...

Hey, it's me again. It's been awhile; eight months this time. Thanks again to those of you who read every time I post. Feel free to comment and share if anything resonates with you. This is therapeutic for me and if it can help anyone else, I'd love that. If you are reading my blog for the first time, I invite you to check out some earlier posts that describe my journey with mental illness, starting here. For general information on Schizoaffective Disorder, visit https://g.co/kgs/7sk4iZ.  

The last few weeks have been rough. I've been having some visual and auditory hallucinations and my "backup emergency med"(Risperdal) has had to be added to my daily routine to help curb this. One positive to this is that I've been sleeping better since adding it to my nightly routine. I have been seeing people and objects in my peripheral vision that aren't really there, and hearing voices and random noises. Thankfully I do not typically experience "command-type" hallucinations, and I've been devoid of delusions for quite some time now (at least, that I'm aware of. Now I will probably drive myself crazy with paranoia wondering if I'm experiencing any delusions). 


I've had a few spells of suicidality lately as well, which have seemingly come from nowhere. I hate when it gets that dark. My "normal" has become dysthymic over the last couple years (Click to read information about dysthymia if you are unaware). Sometimes when life just gets to be too much I start to shut down and sink lower until the darkness creeps in. I don't self-harm. Not actively, anyway. I do engage in self-destructive behaviors at times, such as overeating and sleeping too much, but as to actually harm myself, I don't have the nerve. Because of this I doubt that I could ever take my own life, but there's also a part of me inside that thinks that offing myself will be the way I eventually die. I consciously know that I have no good reason to commit suicide, I know that my life could be much worse, I know that I have abundant blessings in my life, but mental illness does not take any of that into consideration. It strikes at times for no apparent reason, and the reality is that it can grab hold of anyone's life. 




I've been hospitalized twice in the past for almost committing suicide. Once in 2012 and once in 2017. Both times I had plans to overdose on all my psych meds. Now, I'm terrified to do that since having gastric sleeve surgery -- if I were to fail at killing myself, I would be in a LOT of pain and discomfort due to the small size of my stomach and having to have it pumped. I could "ruin" my sleeve as well, which could reverse all the progress I've made with weight loss. I've lost just over 100 pounds since last December when I had the procedure done. A lot of people don't know that I had weight loss surgery (WLS). Part of me feels ashamed because I didn't lose the weight on my own. But the better part of me is just proud that I took a big step to get part of my life back. I take so many psychiatric medications and the number one side effect for most of them is weight gain. Over the last several years of treatment I had gained well over 100 pounds and I'm just now getting back to my wedding weight. I am still about 15 pounds overweight. My weight has remained the same for about 2 months now. I'm going to have to work hard with exercise to get the last bit off.


Losing weight has been good for my self-esteem. I can wear sizes now that I haven't been able to in over a decade. My high school weight is actually in sight. My blood pressure is phenomenal and my blood sugar is always normal now. I was on blood pressure medication at the age of 24, and prediabetic due to my excess weight and poor dietary habits. I generally like what I see in the mirror. So, I'm thankful for my WLS and that my husband was supportive of it and that my insurance took care of it. 


In thinking about it, (and my psychiatrist agrees) the increase in my symptoms lately could be due to this time of year and season. Around this time three years ago, I was beginning to exhibit signs of mania, which would eventually lead to my full-blown psychotic break on December 31, 2016. I am reminded every day of the signs as I view my Facebook Memories. I was adding friends by the dozens, most of whom I did not really know, and posting a lot of weird stuff. Even with my education and experience in mental health, I was not self-aware enough to realize what was going on at the time. In anyone else, I would've been able to identify the symptoms and predict what would occur next.


In addition to my psychiatric symptoms (and I haven't even mentioned my anxiety lately), I've been having some physical illness as well. I have had several spells of nausea and vomiting. I know that I overate at Thanksgiving and I'm sure that contributed to being sick for a few days afterward. My new stomach is small and sensitive, and I am still learning just how much I can eat and what I can eat in general. Being physically ill, having near-daily bouts of anxiety, psychosis, and suicidal thoughts is a humongous storm that I've been taking on the last few weeks. 


In saying all of this, however, I have to acknowledge what is going right in my life. I'm convinced that the only way I've been able to manage this (in addition to therapy and medication) is my great support system. My husband is my #1 go-to for everything. He listens, analyzes, prays, and stays in contact with my doctor. My mom is my biggest cheerleader and always encourages me and prays over me. My mother-in-law, father-in-law, and sister-in-law always lend a helping hand if I need help with the kids or really anything in general. I know I couldn't be doing as well as I am without any of them. I thank God for my family, and a couple friends that I can reach out to. I don't do it often because I don't want to be a burden, but I do occasionally text with a select few who can identify with what I'm going through. I think that having support is the secret to keeping my head above water when everything else is trying to drown me. That being said, if anyone reading this is struggling with thoughts of suicide or any other issue related to mental health, I want to be here for you. I encourage you to intentionally seek out individuals who can be a part of your support system. You can start with me. 


I will just keep swimming, until better days come. I pray that you can do the same. 


ETA: I had my disability hearing in July 2019 and was approved for Social Security Disability in September 2019. This has been a huge relief off my shoulders and we are in a much better place financially.

Wednesday, April 17, 2019

When Life Hits You Like a Ton of Bricks

Well, it's been almost nine months since I posted here. As much as writing is therapeutic for me, it's hard to find the desire or motivation to organize my thoughts and put them together in this way. Thank you to those of you who continue reading despite my lapses in writing.

Living with Schizoaffective Disorder is something I wouldn't wish on my worst enemy. Life will never, ever be the same again. I mourn my old life and my old self daily. My husband says that different doesn't have to be bad. I agree with him, but this different is a hard pill to swallow.

Up until this week, I had been doing "alright" for a few months. No major highs or lows, just some dysthymia and a few cases of minor psychosis. I was smiling more and some people even commented that they could tell I was doing some better. While this change was welcome, it still wasn't the same. My smile could only last so long and my happiness was always dampened by the overwhelming reality that I have a serious mental illness that will never change. My husband and I even enjoyed a cruise in March but my happiness could only go so far. The last time I felt true happiness, joy, elation even was on the verge of my psychotic break in 2016. I have yet to feel that type of emotion since. My family means the world to me and my two little boys are the reason I'm still here, but admittedly the feelings of happiness associated even with that are limited. It's like there is a roadblock in my brain that won't allow me to feel more than a fraction of what I used to feel.

Then, this week, depression, anxiety, and symptoms of PTSD came down on me, hard. I can't seem to find a reason why it hit this time. It seems like this is just part of my life now: be "okay" for a little while and then feel terrible for a while longer. I know that spirituality is a trigger for me now, but I don't know why all of a sudden the symptoms came when they did. As most of you know, my relationship with God has greatly changed since I became ill. I have a fear of becoming too close to God because of the role religiosity played in my psychotic break. I won't rehash the details since most of you have read all about that, but if you haven't you can start here: https://wisdomwrinkles.blogspot.com/2017/07/part-1-of-5-living-with-serious-mental.html. I haven't sang a solo in church since, and I have even stopped singing with the congregation. It's hard to admit all this, especially since my husband is a pastor. I feel as though I have failed him as well as everyone at our church. I feel so disconnected and conflicted that there are times when I don't even know what I believe anymore. I know I believe in God, and it is important to me that our children are in church and learning about God, but I do not have a peace in my spirit. Reading the Bible feels
stagnant, and I rarely do it. I sometimes pray, but I feel guilty about praying and asking for things when I feel so far from God. I struggle with the fact that he hasn't healed me and probably never will.

I've been having flashbacks of my psychotic break and the events surrounding it. Even though it's been over two years, it feels as real as yesterday. The thoughts interrupt the most basic of tasks. I become so depressed that I literally feel like I can't do anything but sleep. I slept 3 hours during the day yesterday and would have slept more if I didn't have to get my kids to and from school. My anxiety keeps creeping up to the point that I can't handle it (even more than usual), and I struggle to breathe normally as these thoughts invade my head. Part of me thinks that I've been subconsciously distancing myself from God to keep from dealing with all of this, because thinking about God dredges it all back up. Additionally, this week I've been disoriented while driving and unable to figure out how to get to routine places. It's beyond scary.

I often wish I were dead; more so this week. I'm not actively suicidal as I don't have any plans or a means specified, but just the thought that I'd be better off dead pervades my thoughts regularly. I know it has to be exhausting living with me and the constant issues that come with mental illness, and I feel like me being gone would be a much-needed respite for my family. I'm not a good mother. I don't say that for attention or for compliments. It's how I genuinely feel. I'm not nurturing, I don't keep routines with them, I can't keep house, and my fuse with them is short. I wish I was the mother I dreamed of being. As much as I want to change, my illness holds me back. I have little energy and motivation. Despite this, as I mentioned earlier, the only things that keeps me from being actively suicidal are my children. I know that they are already predisposed to mental health issues, and losing a mother to suicide would only bolster their chances of struggling with mental illness.

I'm not really sure the purpose of this post other than trying to cope with everything that's going on, and continuing to shed light on mental illness. I welcome questions and comments, so feel free to give me a shout.












Tuesday, July 31, 2018

A Year in the Life of Bipolar: 2017

Preface - I started this post in January, when I was in a weird frame of mind; clearly negative but also hopeful 2018 would be much better. I came back to finish the post just recently.

2017, by no exaggeration, was the worst year of my life. It was doomed before the clock struck 12 am, January 1st. I won't rehash the details of the onset of my disorder or psychosis since many of you have read that in past posts. But to paint a clear picture, I spent December 31st, 2016 in two hospitals, leading to an 11-day stay in the psych ward. These first 11 days are a blur. I remember bits and pieces, mostly of times in a state of psychosis. When I was released to go home on January 10th, I wasn't better. The psychotic episode that lasted several days had lived and died, but I was still manic.
I was granted a six week reprieve from work, and my husband graciously decided to take advantage of this time off work and took me to Universal Studios in Orlando, FL - my favorite place on earth. My husband and I went, just the two of us, and thoroughly enjoyed ourselves. I still feel like I was at least hypomanic at the time, taking any opportunity to spend money. On our way back from FL, we stopped in Memphis for my live AGT audition. The reality of the whole ordeal set in when I saw the sheer number of people auditioning, and again when all the other singers in my group were just as good, if not better than, me. No way I was winning AGT, much less getting accepted to the show. Ego deflated a little, I still enjoyed myself and vowed to try again next year (now this year, and I haven't gotten the courage to try out due to the extenuating circumstances).

I spent the next few weeks with my family. At first, I couldn't be alone with my kids, per orders from Crestwyn. It was a weird feeling, kinda like having the rug pulled from beneath you.
February came and a few days in I went back to work. I poured myself into my work like I'd never been gone, but it didn't take long for work to become incredibly hard to do. I was pretending nothing had changed, but my reality is that something just short of everything changed. I was now seriously mentally ill. A far cry from the episodic depression and anxiety I'd struggled with in years past. I had new diagnoses I was still breaking in, and my PTSD had been greatly exacerbated by the psychotic break. I began to have invasive flashbacks to the events of December 31st, and often they clouded my entire day with darkness and trepidation. Counseling children and families, especially those with mental illness or trauma similar to mine, became almost impossible. I struggled through each day of work, challenged almost beyond what I could do. I dreaded work. Not because of the "I hate work blahs" we all get, but because I had to face my demons everyday and was expected to somehow help others face and eradicate theirs, too. It was almost too much.

In March I found myself with physical health problems and ended up in the hospital for about a week. My bile duct was blocked again which required a new stint. Due to my PSC I bled a lot internally which required me to need a blood transfusion. My family remarked how pale and sick I looked, but it compared nothing to what I felt inside. I remember just laying there in my hospital bed, day after day, doing nothing or watching TV mindlessly. I was depressed in a bad kinda way. For every bit as manic as I had been during my break, I became that much more severely depressed. After my hospital stay I was released back to work, but again it was almost impossible to function. I began to struggle with suicidal ideation worsening by the day. I told my husband but I don't think he knew how to react other than to tell me to keep pushing through. One day, mid-day, I had had all I could handle. I had worked that morning and had a personal therapy appointment coming up, then was expected to go back to work and work well into the evening hours. I wanted nothing more than to die. My mind and body were exhausted to the fullest extent and I found no peace or joy anywhere I looked. The only thing that kept me from finding a way to end it immediately was the thought of my children and them growing up without a mother. When I got to therapy I shared all of this with my therapist who suggested that I be placed inpatient due to the severe suicidality. She called Crestwyn, upon my request as I was at least familiar with them, and they accepted me. I had to drive back home from Jackson and pack my bags, and then my mother-in-law and sister-in-law drove me to Memphis.

I was there for several days, and from almost the very beginning begging to go home. I was sure I'd do better at home with my kids not away from them. But they insisted that I stay for at least a week and so I did. Every day was a countdown to going home. My experience was a lot different this time. After one night I got to move over to the "normal" wing, where things were much calmer in general. My first night, an aggravated, psychotic patient was screaming and cursing, stomping up and down the halls for hours, scaring me and keeping me from sleep. The last time I was there, that person could have been me. Being hospitalized for depression/suicidality is totally different that being hospitalized for mania/psychosis. This time around people weren't scared of me, they were just silently miserable just like I was. Going through the motions during group therapy time, saying the answers that we knew the therapists wanted to hear. Finding little solace being in a facility, but the hope of medication changes and symptom alleviation were present. This time around my therapist placed me in an EMDR (Eye movement desensitization and reprocessing) class for trauma. It was one of the most unique experiences I've been through. We were partnered up, one of us the "processor" and one the "facilitator". As the processor we were to close our eyes for the length of the exercises and share the most intimate details of our trauma to the facilitator, who was just another patient, a perfect stranger, while they kept a beat tapping on our knees. I could have chosen a few different scenarios but I chose to go with childhood traumatic experiences with my father. It's hard to say if it worked or not...I think about those things less as time goes by but I don't know that it's due to the EMDR.

Little worked to help my depression. Medication changes just made me sleep more, which was counterproductive. My therapist discussed with me that she did not think it would be appropriate or beneficial in any way for me to return to work. This instantly wrecked me with anxiety because I did not know how my husband would respond to this or how we would fare without my income. At that time my husband did not have a job lined out for the fall yet. Sure enough, he came across to me as furious when learning their recommendation. I felt like he blamed me for everything and like it was all my fault. Thankfully, after several days my husband came around in agreement that work was not for me at this time, and arranged for me to apply for Social Security Disability, with recommendations from the doctor in hand.

I came home from the facility and resigned from my job, which was so incredibly hard to do and not done without tears. My job of almost 2.5 years, gone because I simply could not function at the capacity needed for this job. I found myself sitting at home every day, which may sound like fun but it reality it was depressing, knowing that my condition had worsened to the point to where I couldn't work or even care for myself some days.

My husband became my strongest support and worked to help me get through my days. We took a vacation to Las Vegas in June and I had a really good time, for being somewhat depressed and forlorn. I enjoyed the summer after that with my husband and children as much as I could, but darkness still impeded in nearly everything. I attended regular therapy and medication management appointments and continued to stay about the same. In July I wrote a 5-part blog series on living with a serious mental illness (you can go back and read them if you so desire) that really covered my life during and following my psychiatric break.

Admittedly much of 2017 is a blur; as a result of my deep depression I suffer from memory loss. There are many chapters of my life in which I have to rely on my husband to recall because I simply cannot do it. I remember a few bright spots, such as my son starting Kindergarten, my youngest turning two, and my oldest turning 6. I mostly remember walking around in a fog, sleeping many of my days away and longing for meaning. I remember parts of going to a Queen + Adam Lambert concert with a good friend, and going out to eat a few times with friends. Around November I started coming to terms more with my diagnoses and the healing process, which I blogged about. It was and is still a messy, complicated, and sometimes scary thing.

2017 was hard. 2018 is proving to be a little better but still a trial every day.  A couple months ago I received a new diagnosis of Schizoaffective Disorder, Bipolar type. This is due to my increasing hallucinations along with the continued mood disturbances. The hallucinations are usually minor but bothersome. My Disability was denied and I am now awaiting a court date in the appeal process. I will post more about this at a later date. I mainly wanted to finally wrap up my 2017 post.



Monday, November 27, 2017

Unfinished

 From my last post in July to now, I have done a lot of thinking and processing of the events that permanently altered my life almost a year ago. I've done some healing, too. Unfortunately, although some would like to believe so, I'm not completely healed or cured. I still have, and will very likely always have, Bipolar I with psychotic features and PTSD. I have even experienced another psychotic episode, though it was much milder than before. I still have really rough days. Forgetting my medication for even one day can throw me into a tailspin. However, for the past month or so I've been in the healthiest mental state I've been in a long time. No doubt thanks to your prayers, finding a good medication combination, and biweekly therapy sessions. Having a couple good friends to get out and do things with occasionally has helped as well.

During this time I have questioned over and over things like, "Why did this have to happen? Why me? Why does life have to be so hard? God, why would you allow this to happen when you knew I was just trying to be faithful to you, to only come out looking a fool?"  I have questioned my faith in God, even wondering at times if I was becoming an agnostic. Strangely, my belief in God himself did not waiver but my belief in his power and his love did. I felt forgotten. I felt abandoned by the one who said he would never do that. I'd been let down too much by real people in my life, and now this...it was like the ultimate betrayal. My perception of the whole ordeal paved the way for my ongoing and worsening suicidality. Life was so hard, just to get through a single day, and feeling like my prayers were falling on deaf ears...it would just be easier to not even be here and deal with it all. My family would be better off without a chronically ill wife and mother, I thought. Thankfully, altering my medications helped lessen the suicidal thoughts and yes, even at times, plans.

More recently I've begun to wonder if maybe God has actually had his hand in this the whole time. During the onset of my illness, my prayer had been that God would use me for his kingdom no matter what it looked like, and no matter the cost. As I shared in previous posts, at the time I thought that he would be using me as a prophet. Though I was mistaken on that end, what if God did answer my bold prayer? To be used for his glory, no matter what? I said I would do anything for God. I was his instrument to be used as he saw fit.

In one light, it seems incredibly cruel to answer my prayer with a serious mental illness. I have struggled with this thought. But the truth of the matter is, I have wrestled with my mental health for years and just never had a name to put on it. I just happened to have my first psychotic break when I was praying to be used, and this event made my illness easy to diagnose. It was very likely going to happen at some point or another, especially with my genetics.

In another light, it's a kind of bitter-sweet beautiful. I cried out to God for him to use me, and now more than ever I can empathize with just about anybody because I've been in so many different situations in life, even the experience of losing my mind entirely and getting it back again. I don't mean to put myself on any kind of pedestal so please don't take it that way, but I truly feel as though I've had my "Job" moment (season, more like it) and can say that I know what one of the ugliest pains on the earth feels like. It propels me to defend the mentally ill and believe that their souls were died for as well. I know now that those who are "insane" are not always insane, there are episodes of illness and seasons of wellness (as well as one can possibly be).

I prayed before and I pray now that somehow my story is used to help someone else out and further the kingdom of God. In my most recent depressive episode (April - October 2017) I had been very reclusive, finding it hard to get out and about so my words and thoughts on my illness were all spread online. I hope that as I am getting better I can step out into my community and be used in some way.

As usual, I must include some song lyrics that mean a lot to me. Again, here's Mandisa...I feel like her songs tell my life story.

"Not scared to say it
I used to be the one
Preaching it to you
That you could overcome
I still believe it
But it ain't easy

'Cause that world I painted
Where things just all work out
It started changing
And I started having doubts
And it got me so down
But I picked myself back up
And I started telling me
No, my God's not done
Making me a masterpiece
He's still working on me
 
He started something good and I'm gonna believe it
He started something good and He's gonna complete it
So I'll celebrate the truth
His work in me ain't through

I'm just unfinished"

Lyric Video

Friday, July 28, 2017

Part 5 of 5 : Living with a Serious Mental Illness

I’m Still Here
How I wish I could tie up this story with a cute little bow and tell you that everything turned out fine. For the past two and a half months, I have continued to struggle with depression, trying to dig myself out. I’m not suicidal anymore, and I’ve come a long way, but I can’t tell you that I’m 100% better, or even close. I still attend therapy and medication management, but progress is slow. Not a day goes by that I don’t think about December and the psychotic break, or the aftermath of it. One simply does not go through something like that and come out unscathed. I live daily with the embarrassment of not only being unable to work, but the fact that I was even a mental health counselor with a Masters degree in the field, and even I couldn’t predict the onset of my illness or do anything to stop or change it. I literally am having to teach myself how to live again. How to walk, how to breathe, how to sleep without giving into the wiles of the darkness. How to be a present wife and mother. How not to damage my kids too much. How to try to be normal with healthy routines and habits. Quite literally how to smile again, how to feel joy, how to push through when giving up could be the easiest way out.
 Jason and I were planning to begin the process of fostering-to-adopt this year; in fact, we were even set up for the classes in January. We had talked also about having more biological children next year. All those dreams are gone, at least for the foreseeable future. With my diagnoses, I probably wouldn’t even be allowed to adopt, and I also have to seriously question if having another biological is safe (due to the effect of my medications on pregnancy) or the best choice (due to the unpredictability of my physical and mental health).
I have to be honest. Through all of this my faith has been greatly shaken. Not only because I just turned out to be psychotic instead of fulfilling the will of God, but because I didn’t even feel comfortable discussing this with other Christians. All I’d ever heard from the church in general about mental illness was either negative or it wasn’t discussed at all, swept under the rug because we just don’t talk about stuff like this. How could I tell them that I’d been in an institution not once, but twice within a three month period because of a severe mental illness? Would they think I was possessed, evil, not of God? Would they tell me to just pray harder? Because I’d heard enough of that already. I enthusiastically welcome prayers, and I do still believe, but telling me to pray more or to pray harder is like a slap in my face. I’ve been a Christian since I was five years old and I know how to pray. I know how to read the Bible. I know how to study the Bible exegetically. But none of it has spared me from my problems. It didn’t stop the abuse as a child, that I also have PTSD from. It didn’t stop the depression and anxiety as a teenager. It didn’t stop my multiple physical ailments. It didn’t stop my suicidality in 2012. It didn’t stop my mania or psychosis in 2016. It didn’t stop my depression and suicidality this year. Pray for me if you’d like (I really do welcome prayers), and I’ll hold onto believing that God can heal me, but don’t tell me to pray harder. What if God chooses not to heal me? What if I cycle back and forth between mania and depression for the rest of my life? What if I can’t ever look you in the eye and tell you that I’m okay? Because for the last several months, I haven’t been able to.
I have been terribly lonely the last seven months, living in the shadows of this illness. Very few people knew until this week, and I honestly feel like a couple of my friends distanced themselves from me, even if it was on a subconscious level. I went months without hanging out with friends, very little talking or texting, living like a recluse. No one seems to know how to respond to something like this. That’s why I decided to write these blog posts – one, as a way of releasing everything that’s been pent up, and two, as a way to shed light on the subject and hope that people can begin to understand the living hell that mental illness is. And in doing so, it might give someone who is suffering the ability and the courage to speak out as well.
Now that I’m working on getting better, and I have goals in mind, by nature I won’t give up. I do think that some of the passion I have is God-given. I can’t sit back and do nothing. I have to find ways to force myself out of my comfort zone in order to get better, and I’ve been working on that. I know that I am an “Overcomer”, and I know that there’s a reason “I’m still here”. While my walk with God has been on shaky ground, I have found solace in Mandisa’s music and her lyrics push me to keep going.
I was just approved for long-term disability benefits through the plan my employer had for me, and I’m in the process of applying for Social Security disability. It was extremely hard for me to come to terms with the fact that I am truly disabled at this time, and it will likely be years before I can work again, if ever. But this is where I am and I cannot change that. It’s been hard finding my purpose without having a career, but maybe for right now my purpose is just to work on me, and be there for my family.
Yesterday
Had me knocked to the ground
Had me down for the count
My faith a million miles away
And I dropped outta sight
This overcomer, lost her
Will to fight

I know it's been a while since
Anybody see me smile and
Shame had me thinking it was
Game over
Thought my best days were gone, yeah
Turns out, that I was wrong 'cause
This is my comeback song, yeah
And by the grace of God

I'm still here
Hope is rising, waking up my soul
I'm still here
All my broken, turning beautiful
'Cause I feel my heartbeat beating
And my lungs breathe- breathing
Guess my God's not done with me yet
I'm still here

--“I’m Still Here” by Mandisa


THE END

Part 4 of 5 : Living with a Serious Mental Illness



The Aftermath
After about seven days, I felt myself coming out of a fog. The first thing I remember is my therapist talking to me, asking me if I am aware of who I am and where I am at. I had figured out that this was a mental hospital, but I didn’t know how long I had been there, how long I would continue to be there, and what exactly happened to me. My therapist explained that my diagnosis was Bipolar I, manic, severe, with psychotic features. I had been taking and would continue to take an antipsychotic medication along with my antidepressant and an antianxiety medication. I was told I would soon move from the acute wing of the hospital to the wing with the more stable patients.
I fell into the normal schedule and routine at the hospital, and I started making sense of my surroundings and activities. I started to feel somewhat normal again. I participated in group therapy, individual therapy, and sessions with the psychiatrist. I became a model patient. I often talked and shared my experiences and feelings in group therapy, more so than the other patients. I was getting back to my old self, outspoken and overachieving. I remember a nurse telling me that people like me is why they do what they do, and they loved to see turnarounds such as this. After a few more days of doing well, with no symptoms of psychosis or mania, the hospital allowed me to go home. I felt pretty good, and I was more than ready to see my husband and children. I was to continue with outpatient therapy and medication management, and to come back if the symptoms returned.
So, I went home. Thankfully, I was given six weeks’ FMLA time off, which I spent at home mostly resting. While I was gone, Jason had converted our extra bedroom into a “coping room” for me where he set up my desk, office supplies, and art supplies so I could come in there and relax, be creative. I spent a lot of time in there painting, drawing, doing puzzles, and writing. I was doing pretty well for several weeks. I attended my therapy and medication management sessions faithfully, and took my medicine correctly. During my time off, we took a vacation to Universal Studios in Florida with the kids. It was a blast. I even went on to do the live audition for America’s Got Talent in Memphis (this time singing a different song, of course). The time went quickly though, and soon it was time to go back to work. I was nervous but excited to get back into my normal routine. The only things amiss were the continued symptoms of pregnancy. It turns out that the pregnancy in the hospital was definitely a figment of my imagination, but I believed it so much that my body actually began to exhibit the symptoms, even after I was out of psychosis. Had the pregnancy tests not been negative, I would have sworn I was pregnant; turns out, I had a hysterical pregnancy. After several more weeks, the symptoms subsided.
In March, only a few weeks after I returned to work, I began having the old, familiar, intense pains in my abdomen and I was immediately worried about my bile duct again, as this was the primary symptom before. I went to the emergency room with level 10 pain; a CT revealed that indeed my bile duct was occluded, and I would need to be sent to Jackson for an emergency surgery. I began to pass large amounts of blood and this continued even after the procedure, in which they replaced the plastic stint with a metal one. I passed so much blood that I required a blood transfusion, and I stayed in the hospital for a week. I found out that the source of the problem, causing the continued blockages and bleeding, was something called Primary Sclerosing Cholangitis (PSC). It is an autoimmune disease of the liver and bile duct where the liver attacks itself and degenerates over time. I was told that I will likely need a liver transplant within 10-15 years. It also makes me overly tired and weak. This combined with my Crohn’s disease made me feel like I was falling apart.
After discharge I went back to work again. Other than my medical problems I’m not sure what exactly triggered it, but I began to fall into a depression. At first I thought little of it; I’m no stranger to depression and anxiety, as I’ve suffered off and on since I was 14 years old. I even had an inpatient stay back in 2012 for severe depression leading to suicidal ideations. This depression started out normally, feeling sad, hopeless, and wanting to sleep more. But over time, the depression worsened. It became incredibly hard to get up in the morning. Work tasks that were old hat became very difficult, as I couldn’t concentrate more than a few minutes. I could no longer think critically or problem-solve, and talking about cases in work meetings was near impossible because I couldn’t conceptualize problems or formulate goals. I found it hard to help clients when I was struggling with my own problems. I no longer found joy in my work, and I feared that I wouldn’t be able to do it much longer. My personal hygiene declined; it was a chore to make myself get in the shower every few days, and brushing my teeth was a thing of the past. I had very little energy, no interest in using coping skills, and found happiness in absolutely nothing. Not wanting to, I even began to detach from my own two little boys.
Within just a couple weeks, the depression twisted and darkened. I began to ruminate on what happened to me in December with the onset of the mania and psychosis. I felt like a terrible, worthless, crazy human being that had put my family through hell. I couldn’t handle that mental illness that severe happened to me. The psychotic break became a trauma in and of itself. I worried that it wouldn’t stop with just one episode. My husband did not deserve a crazy wife, and my children did not deserve a crazy mother. There was no telling what I would do after everything that I did do. What if my medication stopped working? What if it was only the beginning and the manias and psychosis would just continue to get worse? My Christian faith did little to help me, as I began to question God about everything. It felt like my heart literally almost broke in two when I admitted to myself that I was never following God’s will in December, I was simply very, very sick. It was like the wind was knocked out of me. Before I got sick I had been very faithful, probably the most in my life. I was reading my Bible every day, in fervent prayer multiple times a day, and attending church regularly. I prayed with and read Bible stories to my children every night. I was doing everything right, and I was so convinced when God told me I was a prophet…only to be very, very wrong.
The depression was unrelenting. I became so miserable, so dark, so lonely, and so scared that I could do nothing but think of death. For days I debated the pros and cons of the different ways to die. I knew hanging wasn’t a good idea; I was afraid that I would suffer too long. I wanted to die quickly and with as little pain as possible. We had guns, but nothing that would be easy to use by myself. I decided that taking all my pills would be the best way to do it, as it wouldn’t be messy and hopefully I could just go to sleep and not wake up. I was scared to actually do it though. I was scared that my children would find me. I was scared that it wouldn’t be enough to kill me but instead leave me with organ damage and I’d live a miserable, sickly, disabled life. Admittedly I was also worried immensely about how my children would fare without me. I knew that if I was successful in killing myself, I would seal the deal for their fate. They already had a biological predisposition for mental illness, and if I died in this way it would make their chances even greater. I hoped that focusing on them would keep me from doing anything stupid.
But as much as I tried, I couldn’t just will myself to get better. As much as I pleaded to God, I couldn’t pray myself out of the pit. As much as I listened to the preacher talk about giving my burdens to God, it didn’t make a difference. The intrusive thoughts that death was the only way out continued and became smothering. One day, I had had enough. It just so happened that I had a therapy session scheduled that day, and I confessed my feelings to my therapist. I shared that I had to go back to work after the session and somehow muster a good enough front to conduct a therapy session and then make my way back home to my family. I didn’t know if I could do it, and I felt certain that one way or another, I would be dying soon. My therapist strongly encouraged me to go back to the hospital. I texted my husband and told him what she said. He was completely blindsided. He knew that I had been depressed but didn’t realize how serious it had gotten, even though I felt like I had told him. He was very obviously frustrated with me, but I knew that I had to go to the hospital. Death was imminent otherwise, I was afraid. So I let my therapist call Crestwyn, and they agreed to take me back.
And back to the hospital I went. It was different this time, because while I was greatly depressed I was more in my right mind than the first time I had been there. I was miserable. It felt like prison. I hated going to group therapy sessions. They seemed so cheesy and pointless. Boring, useless worksheets: “List out your positive qualities and notice how much better you feel about yourself!” It was bogus. This was not going to help me. Just a couple days after entering the hospital, I was begging to go back home, promising my therapist that I was ready and I could handle it. She told me that I would have to stay at least a week. So each day I counted down the time until I could go back home.
My therapist explained that falling into such a deep depression after a mania was normal, as is the course with bipolar: cycles of manic highs and low depressions. Of course with my background in mental health I knew this, but it frustrated me that one day I just woke up depressed, months after the mania, with no one specific trigger. She said that these cycles were just a normal part of my illness, and that I could expect it to continue to happen, but that with the proper medication it would lessen. I was pissed, for a lack of a better word, and I didn’t understand why I just became Bipolar randomly. While I had struggled with depression, I never had the mania or psychosis at all until December, at 27 years old.
 While I was there they made some changes to my medication, increasing my antidepressant to a more therapeutic dose. After several days I no longer felt suicidal, but the depression itself remained. Without suicidality, the hospital couldn’t keep me. However, my therapist and psychiatrist were very worried about the severity of my Bipolar, with the two hospitalizations within three months of each other. The prognosis wasn’t good, they said. They believed I could and would get better over time, but the course of my illness was unpredictable. They told me that it would be a huge risk to go back to work, and wrote out a letter deeming me disabled.
In an instant, my career was ripped away from me. I could no longer work, and I knew that my illness may or may not stabilize to the desired outcome. Once I was discharged from the hospital, I sadly went back to my workplace and resigned. I didn’t know how my life would play out next. It did little to remedy the festering depression that remained.
TO BE CONTINUED...